Road Race Registration is Live!

We have gotten the Road Race registration live on and we’d like you to register! The road race is a 4 mile run or 2 mile walk from Hull High School in Hull, Massachusetts with a Halloween Theme and Costume Contest. Please email with questions!

Link to Registration:

All proceeds are being donated to Massachusetts General Center for Human Genetic Research for Juvenile Batten Disease Research! This race is in honor of Rachel, a really lovely little girl who is unaware that she dying from Juvenile Batten Disease all the while her Mom (me) and her family are trying to make sure that she gets to squeeze as much fun out of the time she does have on this earth. She was born completely perfect and since the age of about 6 she has gone completely blind, lost a great deal of her brain power and is now losing the abilities to walk and speak.

All we want from this race is to fund research of this disease to prevent another parent from having to lose their child. Thank you! <3

Photo Caption: Rachel and newborn Charlotte having a cuddle.

1 thought on “Road Race Registration is Live!”

  1. God bless you Kate for all you are doing for Rachel & all of your family & this very important cause. So glad that you were all able to have another great trip this summer.
    Continuing to pray, with love,
    Valerie Stillman
    (Don’t know if you remember me, but I’m an old friend of your Mom’s from CT)

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