I spent a lot of time in the car yesterday driving. Driving to see the kids new school (which is on the other side of Denver) driving Rachel to respite (and back. Twice.) and running a bunch of errands.
When I got home from running my errands I found that my friend’s husband, who will probably kick my ass for not referring to him as my friend (which he totally is but we don’t admit it, or hug lol), had built Rachel this:
My parents, with the help of my brother, built something similar for Rachel back in Massachusetts so Rachel could enter my parents home. I never expressed my thanks because it’s too painful to realize that that is her future. Yes it is inevitable that she is completely losing the ability to walk but sometimes I just can’t face it.
So for what its worth: Thank youRead More
Thank you so much to Clean Harbors for donating $1000 to Team Rachel! They have been so generous to our efforts to raise money for Batten Disease Research and we are so grateful. Thank you!!!! <3Read More
Hello folks. I just wanted to officially announce on Rachel’s website that we won’t be holding the race this year. Between Rachel’s worsening condition and our family dynamic changing I just don’t have the energy or time to invest in the race this year. My number one priority in life is to make sure all 4 of my children are taken care of to my best ability.
I know lots of people are bummed about this but in my heart I know its the right thing to do.
- KatRead More
An oldie but a goodie, dear friend Geri Calos has organized a night of painting and is donating $5 from each registration to Batten Disease Research! Please consider signing up if you can, this is located at Sea Dog Brew Pub in Hull, Massachusetts! Click to register!Read More
Team Rachel is thrilled to have secured our fourth sponsor with Goodwin Graphics, a very reputable and long-term business in Cohasset, MA. They offer marketing solutions for small business!
Goodwin Graphics: http://cottonfeelsgood.com/Read More