Team Rachel
- Raising awareness for Juvenile Batten Disease
Home
 

road race

Rachel’s Walking


And a conversation about the road race and her Halloween costume!…

0
24
Oct

Team Rachel Road Race!

rachel_star

We have sent in the paperwork to have the 2nd Annual Team Rachel Road Race on October 28th, 2012 with a 9am race start. Cannot wait!!!!!!!!!! I promised myself to send the letter in for approval before her birthday and that is coming up soon (May 18th).

Click here to RSVP to the Road Race on Facebook

Picture: Rachel with a starfish given to her by another blind person that she and her Granny ran into at the end of Hull, MA…

0
07
May
Rachel von Tungeln is a 12 year old girl from Boston, Massachusetts who lives with a terminal brain disease called Juvenile Batten Disease. She has been robbed of her eye sight and the disease is currently taking away her abilities to talk, walk, eat and think.

Recent Comments

Tag Cloud

batten disease BDSRA Birthday blind child blindness Boston Bucket List cellcept childrens hospital Christmas Colorado colorado springs Death eyes florida Flying W Fundraising garden of the gods geocaching grand mal grand mal seizure grief holly humility jncl Julie kansas city key lime pie kids lamictal Life London Rachel retina risperdal road race road trip Sponsors swimming team rachel Terminal Illness Thanksgiving tweets twitter youtube

Recent Posts

Copyright © 2013 Team Rachel. All Rights Reserved.
Top