September 2011
After the recent heat wave affecting New England we (me and the kids) have decided to postpone our summer road trip until September. Its a good excuse to blow off a little school but more importantly the weather will be more temperate and I won’t have to deal with 110 degrees while strolling through Hays, KS or Terre Haute, IN. We stayed there last year in our travels and both were little slices of hell on earth. Neither my kiddos nor their Mom do very well in such high heat.
We’ll be driving out to Colorado and hopefully staying at the Garden of the Gods Campground (they don’t close until September 30th) for about a week and hanging out with incredible friends (they can only be found in one place apparently lol). We were considering staying a while but the Colorado Springs School for the Blind isn’t sure if they’ll be able to provide programming for Rachel.
We’ve generally traveled route 70 and took route 80 home once but we are open to suggestions. Any good road stop ideas? I really want to go to Niagra Falls this time around…. but I hate the drive through upstate New York.
Planning to go to the Flying W for dinner, Santas Workshop for some fun, Geocaching, then float down the Arkansas River and we (me) are looking to do some stock friendly trails with the Jeep while we are out there. Every summer seems to be a little more difficult than the last so we have no choice but to take life by the horns……………..
Read MoreDecember Trip – Foul Ball
Let’s see. Me and the kids planned a Trip of a Lifetime from Boston to Colorado, stopping to see family in Kansas City. The goal of the trip was to see the Flying W Christmas Round-up (Bucket List item).
It didn’t quite happen that way.
My minivan broke down in PA (water pump died and overheating commenced).
Once the van was fixed we hit lots of snow.
We ended up getting to Kansas City and stayed a few days but saw more weather heading through Colorado and Kansas and I decided it was safer to drive home.
I will do this trip again next year (earlier in the Flying W Christmas Season) and we will GET THERE!!!!
Read MoreHeaded Out
We’re going back to Colorado via Kansas City to see the Flying W Christmas Round-Up! Leaving in a few short hours (need a little bit of sleep first) and will hopefully drive as far as Ohio tomorrow and stay in a TBD hotel.
Driving to Kansas City and staying 2 nights then headed to Colorado on Thursday.
Wish us luck that the weather holds out. 
Rachel Update
Today’s picture is the kids with Santa, taken at the Hull MA Carousel Shop. I’ve put this picture in our yearly business Christmas card. :)
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
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