And the birthday cards for Rachel came flooding in

Posted by in (Team) Rachel & Batten Disease, Birthdays, Blog

Almost a month ago I posted a request asking folks to send musical birthday cards for Rachel’s 15th birthday.  Our family has experienced the power of social media and the internet.  Last fall I posted a “Go Fund Me” seeking donations to help me purchase a wheelchair van as Batten Disease is taking Rachel’s ability to walk.  I was able to buy “Cartman” the low mileage wheelchair van at a very low price within a few weeks.  People are incredibly generous and kind.

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MUSICAL Birthday Card Request

Posted by in (Team) Rachel & Batten Disease, Birthdays, Blog

Rachel (on the right) is turning 15 on May 18th and I am asking my internet family to send her MUSICAL birthday cards. She is blind and terminally ill because of Juvenile Batten Disease.

Rachel Vontungeln
4769 Dover Street
Wheat Ridge, CO 80033.

Please share and thank you.

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Julie is turning 5 soon

Posted by in Julie

My beautiful little girl is turning 5 in a matter of days and we are having her birthday at Par Tee in the next town over at an indoor miniature golf place.

On her actual birthday we are going to take all 4 children Build A Bear. This upcoming outing has bought me a lot of leverage with Rachel with her persistence with being late every morning. Today will be day 4 of being on-time and that is a total miracle!!

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