6/25/12 Status Update

6/25/12 Status Update

Posted by in Colorado, Life, Road Trip

We are currently in Colorado Springs, staying just one more night before we head west. Colorado has been riddled with multiple forest fires because of the extreme heat and lack of rain, dry lightning and a suspected arsonist. We were staying at the beautiful Garden of the Gods Campground but because of the high heat and the eventual smoke and nearby evacuations I moved the kids and I to a hotel in the eastern part of Colorado Springs (near Peterson Air Force Base).

Today we are having lunch with some of my favorite people then we’ll come back here and do some swimming and tonight we are going to a Heather’s house of pets (haha Heather, I love you) and a simple, PASTA dinner. Pasta is one thing my kids really miss on the road.

Tomorrow morning, before the roosters come out to crow, we are driving up through Denver, through Wyoming and staying the night in Utah. After one night in Utah we are driving to Eureka California and spending two nights there. We can’t wait to get to California, visit the pacific ocean and see / feel the Redwood Forest. That will effectively cross 3 more items off of our bucket list…

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Horseback Riding

Horseback Riding

Posted by in Batten Disease, Kat, Life, Road Trip

Another Batten mom named Cheri arranged for Rachel and the kids to go horseback riding at the Colorado Springs Therapeutic Riding Center at the Mark Reyner Stables. When we arrived they were waiting and I was a little hesitant at first because most people don’t get Rachel, especially people who don’t know her. About 5 minutes into our session with the ladies and Bubba the horse I realized I could take a deep breath because they are very experienced with helping special needs kids with riding. One lady (Corey) led Rachel and Bubba and Nancy and her daughter walked on either side of Rachel and helped her with balance. I was most impressed with their handicap accessibility and the ramp they had to help kids mount the horses.

It was a wonderful time for all of the kids and a memory I will treasure forever.

Here is a link to their website: http://markreynerstables.com/

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Old friends at an old hang out…

Old friends at an old hang out…

Posted by in Batten Disease, Kat, Life, Rachel, Road Trip

Today we met up with Heather, Nick and Sky (her boys) at the Omlette Parlour. Great food, even better company!

Gotta love a place that serves up good, vegetarian omlettes! Check it out: http://www.co-spgs-omeletteparlor.com/

Picture: Heather and her son Nick

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London – passed out

London – passed out

Posted by in Batten Disease, Kat, Life, London, Road Trip

I’ve been running these kids hard, trying to see a ton of different places. Last night London had a late sandwich and passed out after about 3 bites. He is totally adorable, isn’t he?

Only a few more days in Colorado (which we have packed with plans) then we head out west…. <3

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3 little fish

3 little fish

Posted by in Batten Disease, Kat, Life, Rachel, Road Trip

Love these kids, they love the water and swimming so much! <3

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Rachel – Hottubin’

Rachel – Hottubin’

Posted by in Batten Disease, Kat, Life, Road Trip

Due to the excessive heat in Colorado we have checked into a hotel for the remainder of our stay. Rachel had the pleasure of sitting in a hottub for a little while, something she really enjoys but doesn’t get to do too often.

Life is good!

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McCarthy Meet-up

McCarthy Meet-up

Posted by in Batten Disease, Kat, Life, Road Trip

We went out to lunch with dear friends at Poor Richards in downtown Colorado Springs. Vegan, gluten free or anything else you could possibly want. It was the best food I’ve had in a very long time!

Check out their website: http://www.poorrichardsdowntown.com/

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Team Rachel with another Batten Mom

Team Rachel with another Batten Mom

Posted by in Batten Disease, Life, Road Trip

Sadly, her son passed away last year but that doesn’t stop us Batten Families from sticking together. Thank you to Cheri who treated us to lunch this week! <3

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Team Rachel at GOG

Team Rachel at GOG

Posted by in Batten Disease, Life, Road Trip

Team Rachel is safely in Colorado Springs Colorado and had the pleasure of visiting Garden of the Gods yesterday! Today we’ve been hiding out because of the record temperatures (Rachel and the clan don’t do well in the heat).

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Day 2 Road Trip

Day 2 Road Trip

Posted by in Life, Road Trip

Yesterday we left Hull Massachusetts and drove through Connecticut, New York, New Jersey, Pennsylvania, West virginia and into Ohio. This morning we’ll be stopping by the Batten Disease Support & Research Association to say hello and meet the staff then will get back on the road and head to Kansas City where we’ll stay in another hotel.

While I was bringing the kids and a load of our stuff into the hotel I met two truckers that are staying across the hall, one of them was born and raised in Brockton, Massachusetts. Small world, right?

Today we’ll drive through Ohio, Indiana, Illinois and Missouri. <3

Picture: Kansas City at night

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