I spent the best part of the last 10 days in increasing agony because of what I thought was an infected tooth. The tooth continued to get worse and worse despite the antibiotics I was taking. My dentist tried on two occasions to numb the tooth and had no luck. On Thursday I was in very rough shape, I was having problems sleeping and by the time I saw the endodontist I was shaking, vomiting and in so much pain I thought I could easily (and kind of happily) die! The only thing that helped was swishing cold water on the right side of my mouth.
Turns out my regular dentist and I thought it was THE WRONG TOOTH. This Endodontist was amazing. Numbed me up once we figured out that it was a rear molar (#2) and then did a fantastic root canal (which I fell asleep during 3 times).
My tooth is fixed.
I am in no pain.
I have my life back and my kids have their Mom back. Yay!Read More
I pulled this off of Barefoot Bob’s facebook page. That’s my brother and his girlfriend, Andrea.Read More
I am working on accepting that some children’t won’t grow up and live happily ever after. It is a concept that I live with and I struggle with every single day.
My children don’t see the struggle. This evening for dinner they had their choice of Mommy’s homemade chili or an unlimited supply of cupcakes. 3 / 4 chose cupcakes and my Julie chose both.
Who doesn’t love cupcakes? (Answer: No one I care to know).
Some kids don’t have a “happily ever after.” They just don’t.Read More
We had a good weekend. Friday I took Julie to Childrens and we got the “all clear” for her heart murmur! I wasn’t worried about it because there are countless people out there walking around with benign murmurs but it was really nice to hear good news.
Friday night Rachel and Boston had a sleepover at Granny’s because Boston is POTTY TRAINED! We promised him a sleepover as a reward and he had THE BEST time. I took advantage of being “half off” from kid duty and took Julie and London to dinner at Barefoot Bobs Friday night and then to the dollar store on Saturday. We managed a playdate and met a HUGE dog called MayDay and ran some errands.
Sunday I took John and the kiddos to the MFA and everyone had a good time. Karen, our tour guide, gave us gloves so we could TOUCH some of the exhibits. AMAZING! Even Boston had a good time.Read More
Today I am taking Julie to Children’s Hospital to have a recently discovered heart murmur checked out by a cardiologist.
Julie has spent the last week telling everyone she knows and then immediately following it up with “don’t worry, I’m not worried.”
She is such a good girl. I’m looking forward to having a few hours alone with her. Will update later.Read More
I refuse to spend my time with her overcome with the overwhelming feelings of living a nightmare.
But we are.
Living a nightmare.
This is so unfair.
She barely got started living.
The nausea / nightmare feeling hasn’t gone away since July and it never, ever will.
So if you follow Rachel’s facebook page or know me “in real life” you’ll probably know that the idea of a Bucket List has been the topic of several conversations between me and the kiddos. They don’t understand that this has ANYTHING to do with death so please don’t comment or email me worried that I have a doom and gloom attitude that is negatively affecting them. My positivity is borderline disgusting. LOL
I’ve put “The Bucket List” on the top right of the blog and plan to add many, many more things to the list as the weeks go by. The plan is to take a very long (nearly) cross country trip stretching from Boston up north to Maine and all the way West to Kansas City then Colorado and back. We have free access to several amusement parks through September and I’d like to take advantage of this gift from “Give Kids the World” (the place we stayed in Florida on our Make A Wish trip).
I’m also setting up a FLICKR account to link our pictures from all of these successful missions to show the world that life is too short to wait on the important things in life. Life is too short, people. It’s a fact. Batten Disease is such a shit disease, I refuse to let it steal my Rachel until she has had the chance to use up her body and slides into home base covered in fattening food and exhausted from life.
The more afternoons I can get my children sticky with ice cream this summer, the better! I’ll leave you with a picture from Summer 2009 (the extra 9 year old boy in the picture is my nephew Ryan).
You keep that thumb in the up position, baby. Hold on tight because I’m going to drag you all over this country!!!
For the unaware, “The Bucket List” was a movie that came out in 2007. < link to IMDB>Read More
One of the classes in the kid’s school is organizing the penny collection. I better dig under the couch cushions to fill our sad little bag. LOLRead More
I scooped John and the kids up and took them to Maine for the weekend. We had a great time although I had promised to tray and do some sledding or snow tubing. We met a family of chickens and a herd of alpacas, went swimming and hot tubbing and took the kiddos into a sauna for the first time. We even brought home 3 dozen farm fresh eggs which have already begun the transformation into baked goods.
Here are some of the pictures which I will directly share from facebook (you don’t need a facebook account to see ‘em).
We had THE BEST time! Here is my favorite picture of Rachel from the weekend. Just goes to show that you don’t have to see well to have a fun and full life. Experiences like this are more valuable to Rachel than to a sighted child because of her tactile senses.
I think I think I did a sufficient job at flipping Batten Disease off this weekend. Tomorrow morning we’re going ice skating for an hour. Can’t wait! Gotta get them into a swimming pool more often. They love the water (just like their Momma) and love the hottub (just like their Daddy).Read More
2 cups peeled and shredded potatoes
1 tablespoon grated onion
3 eggs, beaten
2 tablespoons all-purpose flour
1 1/2 teaspoons salt
1/2 cup peanut oil for frying
1. Place the potatoes in a cheesecloth and wring, extracting as much moisture as possible.
2. In a medium bowl stir the potatoes, onion, eggs, flour and salt together.
3. In a large heavy-bottomed skillet over medium-high heat, heat the oil until hot,. Place large spoonfuls of the potato mixture into the hot oil, pressing down on them to form 1/4 to 1/2 inch thick patties. Brown on one side, turn and brown on the other. Let drain on paper towels. Serve hot!Read More