Team Rachel Race 4 A Cure

Date: October 28 2012

Time: Registration at 8am, Race starts at 9am!

Location:  Race starts at Hull High School, 180 Main Street in Hull, MA

Length: 4 mile Run, 2 Mile Walk

Cost: $25: 4 mile Run
$20: 2 mile Walk

We are holding our second annual 4 mile road race (2 mile walk) for Batten Disease Research in Hull, Massachusetts. All money raised through this race will be donated to Batten Disease Research. Please contact us ( if you have the ability to volunteer and help us run the race!

We have registered the Team Rachel Road Race (4 mile Run, 2 mile Walk) with to allow you to register well in advance and we can secure enough shirts and goodies for everyone who joins in! All proceeds from this event are being directly donated to Juvenile Batten Disease Research at the Massachusetts General Center for Human Genetic Research!

Click here to register online at!

Click here to download the 2012 Team Rachel Race 4 A Cure Registration

Register at Good Geeks –¬†667 Nantasket Avenue, Hull, MA 02045 (



  1. Please Let Becca know about the road race and organizing of it. She would love to volunteer her time and help you in anyway possible! I am happy to help too!

  2. Can’t wait for the lemonade stand and count me in for donating water, lemonade mix, and of course, supplies for you all to enjoy Smore’s at night. Let me know what you need assistance with when you organize the road race- I’ll be honored to help out :0)

  3. Hi Kate: I spoke to you awhile ago, my son Nick also has JNCL. He is 19 yrs. old and continues to attend Perkins School for the Blind. I would love to help you with the 5K race in Oct. and have our family participate in it. My friend Janet Gilmartin lives on Allerton Point so I am sure she will be interested as well. I was searching the web for information about CellCept because I am looking into the study for Nick. I wasn’t sure till I read this blog that Rachel had JNCL. I am glad to hear she is active in girl scouts and is doing so much on the bucket list. Lets talk soon. God Bless, Fran Curran

  4. The road race is online!!!

  5. OK what is my assigned job. Apart from taking Rachel. Let me know so I can start now. Mum xx

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