If you live far away but want to participate by making a cash donation to Team Rachel you now have that option right here. Paypal is our online merchant solution that allows you to send a cash donation through either your credit card or your bank account. Please contact us if you have any questions or click on “DONATE” below. Thank you so much!
All proceeds (after we pay Police/Fire/Paramedics) go to Batten Disease Research.
TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives.
Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old.
Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.
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