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Home » Kat
Dec03 0

1035pm. What a fab day.

Posted by Kat in Health, John, Julie, Kat, Life, London, Rachel

Got SuperGlue off to school and spent the day with LittleMan and FireCracker, alternating between playing and working. I picked SuperGlue up a little early from school, well I always get there early so I can hang out for a bit and avoid having to stand in the long pick-up line (the babies always end up crying by the time I get to the front of the line).

After school I took the kids to Barnes and Nobles and the girls each got to buy a book and I got a Low Carb Cookbook for myself. Tonight the girls and I made beef and brocolli from scratch and ate dinner together with LittleMan (well, he watched). HotHubby has been with customers all day at is still not home at nearly 11pm at night (on Fort Carson, I think).

Put the kids to bed, exercised for 45 minutes, did the laundry and dishes, cleaned the house and am now sitting down with a glass of water to relish in my accomplishment. I’ve been having a hard time squeezing in exercise and balancing work with the kids, HotHubby and the house, but I really think I am starting to get there. Now I just have to get caught up on billing *groan*.

Sweet dreams everyone.

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Nov20 2

Um.

Posted by Kat in Kat, Life

Do you ever get the impression that there is a lot of misinformation being thrown around?

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Nov12 2

Another Friday night….

Posted by Kat in Julie, Kat, Life, London, Rachel, Work

My gorgeous Toshiba laptop has died again. It was never quite right after getting it back from the shop this last time, but it has bluescreened and my fabulous husband is unable to fix. Having to fight with them again and be without it for another month sucks. It’s quite embarassing to be borrowing a laptop from my 5yo yet again. Hopefully most of my clients don’t read my blog. LOL

London is wonderful, I took a tub with him today which he really seemed to enjoy. Julie is teething her little head off and has been a BEAR to deal with come the afternoon/evening time. Rachel has been great, she really enjoyed her first week of school (except for calling me on Thursday from the office because she was sad and wanted to come home. Luckily I was able to bribe her with an ice cream and she finished out the day. Rach has an appt with the Doc next week, she hasn’t been seen in 18 months and I want to see if there is anything they can do to help her with the “E”.

Still waiting to be given a date for my small surgery. I could really use some notice so that John and I can work our clients around it. We shall see. I was sent 4 referrals last week, I’m quite pleased with that. I’ve been trying to come up with a great card design and have them 4/4, 14pt, double sided, uv coated… and I think I am nearly done. Wanna see? Complete with bleeds…

Front

Back

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Nov06 2

Thoughts?

Posted by Kat in Kat, Life

How do you think I would look with a perm?

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Oct22 1

Back to normal

Posted by Kat in John, Julie, Kat, Life, London, Rachel, Work

Let’s get my life back to normal and quickly.

Steo one: Send my parents home safely (check!).
Step two: get Julie sleeping back in her own bed (check!).
Step three: catch up on dishes and laundry.
Step four: Get back on track with school, probably ask for incompletes.
Step five: Finish work on GAFS.
Step six: Catch up on billing all of my customers.

On a side note, John’s mother had apparently been working on a stitched quilt for Jack and it came in the mail last week and it is really pretty. I’ll work on getting a picture of it up here this weekend.

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Road Trip for Research!

On June 14th, 2012 Rachel (12), Julie (8), London (6) and Boston (5) and I will be headed from Hull MA to Eureka CA and up to Seattle and back to fufill one of our bucket list items. Along the trip we'll hand out flyers and awareness bracelets and try to raise $7206 for Batten Disease Research, $1 per mile. If you would like to assist us in our goal, please click on the link below and donate through paypal.

GOAL: $7206 ($1 per mile)
$226 Raised to date


Tax ID# 45-3078380

Bucket List

Eastcoast / Westcoast Road Trip!
Visit Redwood Forest
Swim in the Pacific Ocean
Meet Izzy and Elly
See Seattle Fish Market
Organize 2nd Batten Road Race
Ride a Camel
Go to England
Visit Niagra Falls
Go to Mall of America
See the Flying W Christmas Show
Be in JNCL Cellcept Drug Trial
Go Kayaking
Spend the weekend on a boat
Organize a Batten Road Race
Go Geocaching
Go to LegoLand
Drive an amphibious vehicle
Ride Codzilla in Boston Harbor
See a N.E. Patriots Game
Go to Santa's Workshop (CO)
Milk a Cow
Go Camping
Go Jet Skiing
Visit top of Pikes Peak
Visit the Royal Gorge
Go on the Cog Railway
Go to Disney World
Visit an Alpaca Farm
Collect Fresh Eggs
Own a Home again
Cruise to Bermuda
Go to Canobie Lake Park
Go Fishing (Rachel)
Ride a Train
Go Lobstering
Go to Santa's Village (NH)
Go to Storyland
Feed Santa's Reindeers

Things that are in progress are in have a * before it. If you think you might be able to help us experience another item on the list, please email me directly. Thank you.

2012 Road Race

2nd Team Rachel Road Race

Date: Sunday, October 28th
Time: 9:00am Race Start
Location: Hull High School
180 Main Street
Hull MA 02045
Stay tuned for more information!
Proceeds will be donated to Batten Disease Research at Massachusetts General Hospital.

2011 ROAD RACE

Goal: $10,000
Raised: $25,000

$250% of goal!
435 Participants

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About Me

TeamRachel aka mrskatvon is both a website to gain public awareness of Juvenile Batten Disease (which affects my oldest daughter) as well as a journal to remember the events in our lives. Rachel was diagnosed with Batten Disease in July 2009 and while we knew something was "not right" we had no idea that such a nightmarish disease existed. There are dozens of nasty, orphan disease which affect people both very young and old. Aside from dealing with the changes of Batten Disease in my daughter, Rachel, I have tasked myself with making life memorable for all of my children to make sure that (at least) 3 of them grow up to be as well adjusted and happy as possible.

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